careadhd.co.uk

I, like many other people suffering with ADHD, chose Care ADHD as it was the ADHD provider advertisi

I, like many other people suffering with ADHD, chose Care ADHD as it was the ADHD provider advertising the lowest wait times. My GP told me they would send my referral on the 22nd of May 2025. I first received contact from Care ADHD on the 5th of July, 6 weeks later. I finished filling out all the forms by the end of the week and waited a further 7 weeks for a call from the assesment booking team, on the 31st of August, for an assessment on the 13th of October, 6 weeks later. I received my outcome letter on the 16th and immediately submitted my titration request, and didn't hear anything until the 25th of November, 5 weeks later, and that only being further health questions that I had already answered in my initial titration request. I then, like many others who were referred and assessed in a similar time frame to me, was contacted with initial forms for titration on the 17th of December. It's been 9 weeks since then, and I haven't heard a thing.

If we've been counting, my referral to my diagnosis was TWENTY ONE WEEKS (far exceeding the wait time that made me sign up to Care ADHD in the first place) and from my titration request being submitted to now has been EIGHTEEN WEEKS. I have constantly been looking to the website's 'waiting times' page for guidance and been completely understanding with wait times for titration fluctuating (mostly increasing, though). What I'm not understanding about is 1. complete lack of transparency over where patients are in the queue, and 2. what appears to be patients being seen outside of the order they were referred, contrary to what we're told by the care provider.

1. Many patients are attempting to get in contact with Care ADHD for updates on their titration process, with many not receiving responses, many receiving the same generic response that doesn't provide any further clarity, and only some receiving actual updates to their person position in the queue for titration. I find this unacceptable. Leaving people, especially with our medical condition, in limbo for weeks and months on end is honestly cruel. If we're being sent an update email, it shouldn't be a generic 'we're sorry for the wait'. All guidelines for the titration pipeline specifically have been removed from Care ADHD's waiting times page, which only further adds to the uncertainty many of us are feeling.

2. There have been several cases of patients who have been referred in the last few months already having their first titration appointment. Once case I saw was of a patient who had been referred for an assessment on the 20th of November and had their first titration appointment on the 12th of January. From referral to titration within less than 2 calendar months, what has taken Care ADHD 9 months and counting for me, and many patients even longer. For a care provider that claims that all patients are processed in the order they were referred, this simply doesn't make sense.

If I'd have known that Care ADHD's waiting times would be grossly inflated in reality, I would have chosen an alternate provider. It also doesn't bode well for how we may be treated if and when we are finally titrated. There has been discussion of complaining to the CQC and I may have to do the same. It simply isn't fair to treat ADHD sufferers like this.

Date of experience: Feb 22, 2026