If I could give them a minus score, I would. Shockingly poor. I made it clear several times in the call I had a heart attack and was still being monitored, and now 2 other life changing issues had come up that I was under investigation for. I called Irvings today for help (Liverpool office at 15:23hrs UK) in relation to what had happened.
I had handed over a USB with personal data and my DNA profile to my doctor's reception for my doctor, along with a covering note detailing my symptoms and an empty bottle of supplement I have had a bad reaction to in a sealed bag and asked for it to be passed to him in relation to my ongoing care and a consultation I had the night before. It was confirmed this would be done. The USB, my data, note, and DNA profile have disappeared and although yesterday they said they knew who it was, today they are saying they don't know. The doctor got the bottle but is now saying he cannot remember who showed him the bottle. They seem disinterested in the missing USB and personal data but I think its because they know who has it. They have shut down and I am now worried about my care.
The response I got from this firm was
- I have explained everything to you and its not my fault you don't understand it. (I have 2 Masters degree and a member of MENSA at age 13, I think the fault lies elsewhere)
- It didnt matter about the missing USB and files as no-one could do anything with or use my personal data or DNA data anyway. ?????? Not the point. Also not true.
- I hadn't got a claim, so I asked why. It seems he didn't like that.
- He said I hadn't suffered a loss?! I have been left in the middle of monitoring a condition resulting in a heart attack 4 years ago while investigating 2 other issues arising from symptoms and blood tests in the last year, and the DNA results could shed light on my care and save my life. I asked for clarification on what constitutes a loss as isn't the major loss in healthcare, your health? How do I show a significant financial loss? This is when I got the extremely nasty cut off "I have explained everything to you and its not my fault you don't understand it." Knowing I have a heart condition and under stress presently.
- When I had told him what I was doing eg a complaint to the practice manager, or reporting to the Information commissioner, he only repeated that I should do what I just said I was doing. Free consultation? You get exactly what you pay for with this firm.
I entrusted my personal DNA data files, and a note to my doctor concerning my care, to a receptionist in a locked down area who is dealing with patients' personal data, and it disappeared.
She opened the bag personally addressed to the doctor, and took out the bottle, but decided of her own volition to get involved and interfere with my case/care and stole/ kept back/held onto/threw out the USB and data/DNA files, and note to the doctor. I read this was a crime and was going to report it to the police. This solicitor just parrot fashion repeated to report it to police.
Why is this not a 'case' of data breach? I might not be the first. What is she doing with it? Where is my USB and doctors letter now? Who is seeing it. I am extremely stressed and now getting chest pains. The response of this firm was essentially, you're stupid and it doesn't matter. ZERO compassion or empathy.
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