Review Time
My friend was in this hospital for two weeks they diagnosed her with a factor
Wrist which she did not have and with diabetes which she also doesn’t have left her wanting help to toilet nurse told her she would have to wait until she finished her obbs would not recommend this hospital
My friend was in this hospital for two weeks they diagnosed her with a factorWrist which she did not have and with diabetes which she also doesn’t have left her wanting help to toilet nurse told her she would have to wait until she finished her obbs would not recommend this hospital
I am waiting for a control appointment since July 2025 that was supposed to be scheduled for September and now is January 2026. I have called several times, my GP called with nothing happened just empty promises that I will get an appointment in September. After I have shared my experience on media, I have been contacted by someone for an appointment in Jan 2026, now that I have chosen a date from those available and contacted the hospital by phone and email, still no confirmation. It is outrageous how the patients are treated. None of those whom I have spoke on the phone wanted to tell me their name. Called at the number provided and a nurse literally hang up on me after saying she is going to look for someone to make an appointment. Empty promises that I'll be contacted just like last year. No response to my email either.Such an unprofessional behavior and lack of care for patients. My medical condition aggravated and they left me in pain with no treatment.Same behaviour like I had from them in the past, after a visit they forgot to give me the treatment for 4 months. Avoid this hospital at all costs! Doctors and nurses don't care about patients at all, some are rude too if you ask for details on their findings.
I am so moved and grateful for the outstanding care I have received from the neurosurgery staff and especially the MSK consultant I saw yesterday Dr. Matteo Bernardotto. As a whole they have beyond no exaggeration saved my Christmas. The clinic was running an hour late due to a fire alarm being set off by of all things burnt toast. Despite this Matteo went above and beyond to listen and did an injection. in addition to what I had performed 10 days ago that FINALLY has left me pain free after years of excruciating pain. Though surgery is probably inevitable to solve my disc issues indefinitely ; I cannot express my gratitude enough for the gift of a pain free Christmas . This hospital is a national treasure and I feel so blessed to receive such world class care by the NHS. Huge thanks to all the staff working tirelessly there for doing such extraordinary work despite all the challenges. The lovely receptionist even loaned me his portable phone charger which was so gracious. If you are ever blessed enough to be referred to UCL thank your lucky stats as they truly care and the support and care I’ve received far surpasses expectations of what I expected from an overburdened underfunded NHS that for most is an absolute lifeline where private care is financially beyond reach. It’s not until we are faced with a serious health issue that one can appreciate treatment that is thoughtful empathetic and effective. God save the NHS. 🙏🏻
After waiting over 1 year for an appointment, I finally get an appointment for today and when I arrive they tell me it's been cancelled, no-one informed me of any cancellation and it's not acceptable, I travelled far to get there and I wasn't happy at all.
My long-term experience with the UCLH Autonomic Unit has been deeply distressing, and I feel obligated to warn other patients especially those with severe autonomic disorders.I have lived with a rare, degenerative autonomic neurological disease since 1986. I suffered cardiac arrest during a tilt-table test, have severe noradrenaline deficiency, and rely on medications like Droxidopa, which UCLH has in stock but has repeatedly refused to prescribe, despite it being the only effective treatment for my condition. Instead, I have had to import my own medication for decades.Under Prof. Christopher Mathias, my diagnosis was mishandled. When errors became apparent, the response I experienced was not transparency but avoidance and obstruction. After this, I found myself unable to access other specialists, repeatedly redirected to doctors I did not choose, including Dr Iodice, and prevented from seeing anyone outside the same group. Referrals were blocked, rerouted, or rejected without explanation. Over time, this created the clear impression of a coordinated effort to control my case, leaving me with no freedom to seek appropriate care.The issues with my medical records have been even more alarming. Essential test results have been missing, altered, or unreadable. Recent MRI images were provided as cropped, low-quality screenshots rather than proper films or full scans. Some documents I know existed have disappeared entirely. In two cases, I received images marked “Taken From Disk,” raising serious concerns about how my files were handled and why the original scans were withheld. This pattern has continued for years.Because of these repeated actions denied treatment, blocked referrals, missing files, altered documents, and lack of transparency I have come to believe there is a pattern of obstruction centred around the past involvement of Prof. Mathias and those connected to him. From my side as a patient, it feels like a long-standing conspiracy to prevent any external specialist from reviewing the mistakes that were made.Even when I escalated these issues, including serious data concerns and failures in care, the Ombudsman did not address the misconduct I raised. This left me without answers, without treatment, and without accountability.My condition has worsened needlessly because access to essential treatment and honest medical documentation has been repeatedly delayed or denied. What I have experienced at UCLH has caused profound harm, both medically and psychologically.
Dr Umesh Vivekananda detailsTelephone:020 3448 8625Location:National Hospital for Neurology and NeurosurgeryGMC/GDC number:6159473His secretary Gaby she and Umesh don’t bother getting in touch for appointment or phone call because I am having more seizures and some days my focal seizures happening 2 days all day and also giving me headaches after the turn sometimes and my mum can’t stand me and my carers from Extramile healthcare don’t always know when to give me diazepam and 1 or 2 extra Clobazam so I got no support . I can’t get hold of main one Arminder because she doing other shifts or busy with her children so not got support . Uclh hospital know I had 2 operations in Montreal 12 hours long 1989and 1990 and had fluid removed fromBrain and had some right temporal lobe and frontal lobe and hippocampus removed and a dr fromUclh in 2024 said I have no right temporal lobe at all now because it shrunk so memory and everything transferred to left side of the brain . So got no epilepsy support now at all Montreal said the stitching and scaring on brain leave me with depression and anxiety which I have and can’t cure tried all the antidepressants can take with epilepsy medication I am limited with . So epilepsy focal seizures keep happening and have strange epilepsy feeling that continues all day sometimes
Visited today with my Mum and every staff member I came accross was absolutely lovely. Very caring and really warm and friendly. Totally different to my local hospital that make you feel like they don't have time for you.The signage was very clear and concise so it was easy to find our way and if I looked unsure staff were actually asking me if I was OK and knew where I was going. Everywhere looks clean too which for an OCD person to say, is a big compliment.Special thanks to 1st floor surgery reception team, surgery and recovery teams. They carried out their jobs with such care above and beyond what we have been used to and put back some faith in the NHS. All the staff made me feel so much more at ease and confident they would take good care of my MumAmazing service Thank you. Keep up the good work.
Update still waiting forcan apointment told it will be soonProbably be dead before being seenWas referred back to uclh by my gp july 2024 and now its almost July 2025 and the clinic say they run a 6 week apointment diary its my calculation it will be 52 weeks next week
Staff don't know how to relate to autistic patients. I've been reduced to tears by one member of staff who shouted over me and wouldn't listen to me at all. I've been patronised by other staff and when I asked for support from pals and complaints I've just been ignored completely. I've now complained to NHS England.
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